Hello everyone, I wanted to follow-up on Dr. West’s post about cancer survivorship a few days ago. The term “cancer survivorship” can mean lots of different things to different people. In this post, cancer survivors are those patients who finished their cancer treatment and are now being followed to see if their cancer returns and if they have any long-term side effects to the cancer treatment.
One important thing for all cancer survivors is to have a summary of your cancer treatment. A one page summary about your specific treatments - surgery, radiation, and chemotherapy. There is no established guidelines for what the summary should state for lung cancer survivors. This summary will help you as time goes on and you get further away from your cancer treatment. It will also help other health care professionals taking care of you as it’ll be a quick summary of your treatment. Another important thing is to get the contact person and number for medical records of where you received your cancer treatment. That way, if you need to get your medical records, you’ll already know who to talk to.
In terms of what you can expect, there is very little information about long-term side effects to cancer treatments for lung cancer. Most of the information about cancer survivorship is obtained from adults who survived highly childhood cancer or from breast cancer survivors. Especially as we have more lung cancer cancer survivors, it will be really important that we get more information about their health after the treatment to try to keep healthy. A great example is the “how to quit smoking” post.
This is my first post, so please tell me if you need more information or explanation. I look forward to working with you all!
-Dr. McCune
posted by Dr McCune @ 11:09 am link to this post





March 10th, 2008 at 6:38 pm
I am looking forward to getting more new on lung cancer. I was diagnosed in 2006.
March 10th, 2008 at 6:43 pm
My greatest concern is SVC syndrome. Although the tumor shrunk as a result of radiation, the SVC is still flat. Is it possible for the SVC to expand? If not, will I have this feeling of suffocation permanently? I know I need to excercise, but I can’t even walk to my car without breathing hard. I have problems sleeping and I am kind of miserable.
March 10th, 2008 at 8:01 pm
Hi Misty - Sorry to hear about these complications. I am not a radiation oncologist so I do not have experience with radiation toxicity to the SVC. Have you spoken to your oncologist about your trouble walking without breathing hard or checked if a physical therapist is available to help build your exercise tolerance?
March 10th, 2008 at 8:30 pm
Misty,
I’m afraid it’s likely that things that haven’t improved over many months are probably scarred and unlikely to improve significantly. In truth, I think the people who know your case and can review your scans can potentially tell you more, but overall a general principle is that things that have been stable for so long are relatively unlikely to progress significantly, but also probably not likely to improve notably either.
-Dr. West